| 摘要: |
| 目的:系统评价儿童青少年慢性疾病(慢病)用药自我管理评价工具的现状,为保障儿童青少年慢病患者的治疗效果提
供循证医学证据。方法:系统检索PubMed、EMBase、the Cochrane Library、CBM、CNKI、维普和万方等国内外数据库,检索时限为
建库至2023 年3 月,纳入儿童慢性疾病用药自我管理评价工具的文献。采用描述性方法对结果进行分析。结果:针对疾病类
型共纳入16 篇文献,43. 75%(7/ 16)为糖尿病自我管理量表、18. 75%(3/ 16) 为儿童哮喘自我管理量表、12. 50%(2/ 16) 为青少
年通用自我管理量表、6. 25%(1/ 16)为儿童胰岛素治疗自我管理量表、6. 25%(1/ 16) 为儿童癫痫用药自我管理量表。25. 00%
(4/ 16)量表设计有理论依据和中文版。纳入的量表领域为1~8(3. 69±1. 74)个,量表条目为14~52(27. 81±10. 24)个。纳入量
表中,用药管理条目缺乏,主要包括遵医嘱用药、调整药物剂量、药物不良反应、服药的方便性和服药责任感等内容。结论:目前
我国缺乏自主开发的儿童青少年慢性疾病用药管理评价工具,评价工具角度单一,缺乏个人、家庭、医疗系统和社会不同层面的
整合,建议开发与验证适用于我国儿童青少年慢性疾病患者的自我管理评价工具,为临床实施自我管理计划提供参考。 |
| 关键词: 癫痫 儿童青少年 自我管理 评价工具 循证评价 |
| DOI：doi:10.13407/j.cnki.jpp.1672-108X.2024.01.003 |
|
| 基金项目::四川省科技计划项目(重点研发项目),编号2020YFSO035;四川省干部保健科研项目(普及应用项目),编号川干研2022-1702。 |
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| Evidence-Based Evaluation of Self-Management Evaluation Tools for Medication in Children andAdolescents with Chronic Diseases |
| Li Dan, Yang Yaya, Yu Dan, Yang Chunsong |
| ((Pharmaceutical Department / Evidence-Based Pharmacy Center, West China
Second Hospital, Sichuan University, Key Laboratory of Birth Defects and Related Diseases of Women and Children, Sichuan University,
Ministry of Education, Chengdu 610041, China)) |
| Abstract: |
| Objective: To systematically evaluate the current status of self-management evaluation tools for medication in children and
adolescents with chronic diseases, so as to provide evidence-based medical evidence to ensure effective treatment outcomes for children and
adolescents with chronic diseases. Methods: PubMed, EMBase, the Cochrane Library, CBM, CNKI, VIP, Wanfang and other domestic
and foreign databases were systematically retrieved, and the retrieval time was from the establishment of the database to Mar. 2023.
Literature pertaining to self-management evaluation tools for medication in children with chronic diseases was enrolled and the results were
analyzed by descriptive methods. Results: A total of sixteen articles were enrolled according to disease types. The distribution of articles
included 43. 75% (7/ 16) on diabetes self-management scales, 18. 75% (3/ 16) on children’s asthma self-management scales, 12. 50%
(2/ 16) on adolescents’ general self-management scales, 6. 25% (1/ 16) on children’s insulin treatment self-management scales, and
6. 25% (1/ 16) on children’s epilepsy medication self-management scales. Of the included scales, 25. 00% (4/ 16) had a theoretical basis
and were available in Chinese. The included scales spanned from 1 to 8 (3. 69±1. 74) domains and included from 14 to 52 (27. 81±10. 24)
items. However, medication management items were found to be lacking, primarily concerning medication compliance, adjustment of
medication dosage, adverse drug reactions, convenience of medication, and sense of medication responsibility. Conclusion: Currently,
there is a lack of independently developed self-management evaluation tools for medication in children and adolescents with chronic diseases
in China. The current evaluation tools have a single perspective and lack the integration of individual, family, healthcare system and
society at different levels. It is recommended to develop and validate self-management evaluation tools tailored to children and adolescents
with chronic diseases in China, so as to provide valuable insights for the clinical implementation of self-management regimen. |
| Key words: epilepsy children and adolescents self-management evaluation tools evidence-based evaluation |
