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短肠综合征患儿居家营养管理的循证证据总结
陆秋帆,万鑫,沈巧,朱杨帆,胡锦久,张鑫,郑显兰
0
((重庆医科大学附属儿童医院,国家儿童健康与疾病临床医学研究 中心,儿童发育疾病研究教育部重点实验室,结构性出生缺陷与器官修复重建重庆市重点实验室,重庆 400014))
摘要:
目的:评价短肠综合征(SBS)患儿居家营养管理的循证证据,为临床护理实践提供参考。方法:系统检索国内外数据 库、指南网及专业协会网站中关于SBS 患儿居家营养管理的相关证据,检索时限为2018 年1 月1 日-2023 年10 月1 日;由 2 名研究者对符合纳入标准的文献进行质量评价,提取并汇总证据,进一步通过专家会议对证据的整体结构、内容表述及推 荐强度进行讨论并达成共识。结果:共纳入21 篇文献,包括5 篇临床决策、1 篇指南、5 篇专家共识、6 篇立场声明、4 篇系统 评价;共10 名专家参加专家会议,专家权威系数为0. 91;从组织与管理、评估与筛查、干预3 个方面汇总形成42 条循证证 据。结论:本文汇总的SBS 患儿居家营养管理证据具有一定的科学性和实用性,可为医护人员和患儿照护者实施居家营养管 理提供循证依据。
关键词:  儿童  短肠综合征  营养管理  证据总结
DOI:doi:10.13407/j.cnki.jpp.1672-108X.2025.07.001
基金项目:中国博士后科学基金第74 批面上资助项目,编号2023M740440;重庆市自然科学基金博士后基金项目,编号CSTB2023NSCQ-BHX0107。
Summary of Evidence-Based Evidence for Home Nutritional Management of Children with Short BowelSyndrome
Lu Qiufan, Wan Xin, Shen Qiao, Zhu Yangfan, Hu Jinjiu, Zhang Xin, Zheng Xianlan
((Children’ s Hospital of Chongqing Medical University, National Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Structural Birth Defect and Reconstruction, Chongqing 400014, China))
Abstract:
Objective: To evaluate the evidence-based evidence for home nutritional management of children with short bowel syndrome (SBS), and to provide reference for clinical care practice. Methods: National and international databases, guideline networks, and professional association websites for evidence related to home nutritional management of children with SBS were systematically retrieved. The retrieval time was from Jan. 1st , 2018 to Oct. 1st , 2023. The quality of literature that met the inclusion criteria was evaluated by two researchers, the evidence was extracted and summarized, and the overall structure of evidence, content presentation, and strength of recommendation were further discussed and agreed upon through an expert meeting. Results: A total of 21 literature were enrolled, consisting of 5 clinical decisions, 1 guideline, 5 expert consensuses, 6 position statements, and 4 systematic reviews. The expert meeting included 10 participants, with an authority coefficient of 0. 91; and 42 pieces of best evidence were aggregated and formed from 3 areas: organization and management, assessment and screening, and intervention. Conclusion: The evidence for home nutrition management in children with SBS summarized in this article is scientifically sound and practical, and may provide an evidence-based basis for healthcare professionals and caregivers of children to implement home nutrition management.
Key words:  children  short bowel syndrome  nutritional management  evidence summary

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