| 摘要: |
| 目的：探讨药师应用《患者用药手账》进行科普用药干预，在儿童系统性红斑狼疮（SLE）中的效果。方法：选取2018年5月至2019年5月首都医科大学附属北京儿童医院收治的SLE患儿120例，按随机数表法分为干预组和对照组各60例，两组患儿均给予常规治疗，干预组以《患者用药手账》进行科普干预，对照组为常规健康宣教。从患儿疾病认知水平、疾病控制程度、治疗依从性等方面评价干预效果。结果：干预前，两组疾病认知水平、Morisky-Green（MG）服药依从性评价量表、疾病控制程度（SLEDAI）及家庭关怀指数（APGAR）评分比较，差异均无统计学意义（P均>0.05）；干预后，干预组看护人对慢性病认知水平、MG、SLEDAI、APGAR（合作度、成长度、亲密度）均优于对照组（P均<0.01）。结论：药师应用合理的用药科普干预手段如《患者用药手账》，能在一定程度上帮助看护人树立正确用药观念，有利于患儿控制病情，改善生活质量 |
| 关键词: 科普 儿科 慢性病 系统性红斑狼疮 手账 |
| DOI：10.13407/j.cnki.jpp.1672-108X.2021.07.010 |
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| 基金项目:中国药科大学国家执业药师发展研究中心立项课题,编号ndrplc201903-2 |
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| Application of Hand Manual for Patients in the Pharmaceutical Care for Children with Systemic Lupus Erythematosus |
| Xu Xiaolin1, Wu Yibo2, Han Tongxin1, Li Caifeng1, Wang Xiaoling1 |
| (1. National Children’s Medical Center, Beijing Children’s Hospital, Capital Medical University, Beijing 100045, China; 2. Department of Pharmacy Administration and Clinical Pharmacy, School of Pharmaceutical Sciences, Peking University, Beijing 100191, China) |
| Abstract: |
| Objective: To explore the effectiveness of application of Hand Manual for Patients through scientific medication intervention by pharmacists in children with systemic lupus erythematosus (SLE). Methods: Totally 120 children with SLE admitted into Beijing Children’s Hospital, Capital Medical University from May 2018 to May 2019 were extracted to be divided into the intervention group and the control group via the random number table, with 60 cases in each group. Children in both groups were given conventional treatment, and the intervention group was given scientific intervention with Hand Manual for Patients, while the control group received conventional health education. Intervention effects were evaluated in terms of the level of disease awareness, disease activity index and treatment compliance of the children. Results: Before intervention, there were no statistically significant differences in the level of disease awareness, Morisky-Green (MG) medication compliance assessment scale, disease activity index (SLEDAI) and family care index (APGAR) scores between two groups (P>0.05). After intervention, the level of chronic disease awareness, MG, SLEDAI, and APGAR (cooperation, maturity and intimacy) in the intervention group were better than those in the control group (P<0.01). Conclusion: The application of rational intervention means by clinical pharmacists such as Hand Manual for Patients, can help caregivers to establish the correct concept of drug use, which is conducive to the control of condition and improvement of quality of life |
| Key words: science popularization pediatrics chronic diseases systemic lupus erythematosus hand manual |
